Kenzi’s Story

(This is a guest blog from Jessica about her daughter Kenzi. Thanks for sharing this with us, Jessica!)

Kenzi was stillborn January 23, 2007 when I was six months pregnant. During my pregnancy I envisioned how wonderful it would be to have Bailey, our oldest daughter, and Kenzi playing together. They would have so much fun and Bailey was very excited to have a baby sister on the way. Christmastime is a favorite holiday of mine and during 2006 my husband and I discussed how in 2007 we would have double the number of baby dolls and toys under the Christmas tree.

Our dreams and hopes were shattered when I realized Kenzi was not moving and my worst fear was realized, Kenzi had died.

After giving birth to Kenzi and seeing how beautiful she was, I knew that she had changed me forever.

Kenzi looked just like her big sister Bailey even though she was so tiny.

As the holiday season approached, I was often reminded of my hopes and dreams for the year before and Kenzi would have been getting her first baby doll at Christmas. Rather than drowning in my grief, I decided to honor her and her memory in the best way that I could. I created Dolls for Daughters.

I knew I was fortunate enough to be able to buy new dolls for my daughters but as the holiday season approached, I realized other parents may not be able to.

Thus the beginning of my most rewarding holiday season ever.

Here is the blog that I wrote on my website for her 3rd birthday. It tells “our” story..

Happy 3rd Birthday my sweet little girl! Today is the day you were born sleeping. There is not a day that goes by that I do not think of you and my heart does not ache for you. Today I as I do many days, I am wondering what would Kenzi be doing? Would she love dolls as much her big sister or would she love to rock out with music as much as her little brother. I wonder who she would look like and how she would amaze me as her siblings do. What would she want for her third birthday and what kind of party would she want to have?

I know my life would be totally different if Kenzi were here but that does not change the fact that the day she died three years ago a part of me died too. I will never forget the day that I knew I had lost Kenzi. I will never forget the image on the ultrasound machine that confirmed that Kenzi was in fact gone. My screams and cries were from the depth of my soul. A cry that I never knew was possible that became pain I never knew was possible. I cried for my baby girl, for myself, for what was lost. I learned that day what true, immeasurable pain was.

When I found out I was pregnant I was so excited! I could not wait to bring another child into this world and have Bailey become a big sister. From the moment I found out I was pregnant I was convinced that I was having a boy. I had my girl and I told everyone that Kenzi was a boy. I was wrong. At my 20 week ultrasound when the technician told me that I was in fact having a girl I was in total shock! During the rest of my ultrasound no mention was made of any problems with my pregnancy. It was only after when my belly no longer had gel on it, when my husband had gone back to work and I was alone with the doctor in the exam room did my life slowly begin to change. My doctor told me they could not find Kenzi’s lower right arm and he thought I had ABS (amniotic band syndrome). I had no idea what he was telling me and how this news at 20 weeks during my pregnancy would forever alter who I was as a person, who I was as a mother and what I thought of life, God and my relationships. Armed with little information, a huge amount of fear, tears in my eyes and the weight of the world on my shoulders I left his office to return to a high risk OBGYN the next day.

When my husband and I walked in the high risk OBGYN’s office we both hoped and prayed that they were wrong about my pregnancy - that things were okay and we were going to be okay. Our baby, the baby I had been taking care of, the baby I wanted would be okay. Our hopes and prayers were not granted that day or any day in the future when it came to Kenzi. While I was on the ultrasound table with my tummy exposed, warm gel spread around we were told I did suffer from ABS and that Kenzi was missing her lower left arm not her lower right arm. I was also given the news that my sac was compromised and that was a problem as well. However the high risk OBGYN believed that everything would be fine and Kenzi would be born with a missing hand.

Armed with this news, my husband and I both went to our computers to see how we could fix my pregnancy. Not fix Kenzi but make her stay in as long as possible. We had another fear to deal with. My oldest daughter was born premature and I was at risk for that happening again. I contacted a pediatric surgeon who dealt with limb difference and set a time to meet with her. I needed to know how I could make life as normal as possible for Kenzi. I read books on limb differences and I looked I read on the Internet about ABS. What I found scared me. What my husband found was a doctor who saw this more than my doctors did and lived in Philly and worked at CHOPS – Children’s Hospital of Philadelphia.

From week 20 to week 24 is a huge blur. The days run together. In those four weeks we spent an entire day at CHOPS and were given grave news. The doctor there did not believe for one minute I would carry Kenzi to full term. He did not think I would carry Kenzi past 30 weeks if she made it at all. I had a lot of bands in my sac with her, she was growing and moving but my sac was compromised and not the way it should be. This doctor was honest, brutally honest. We wanted that, we needed that but it was hard to hear.

He told both my husband and I that if Kenzi did not make it that we should hope for the best but prepare for the worst. We needed to think about what we would do if she was born too soon and did not make it or if she were stillborn. He encouraged us to hold her, to take pictures of her and to have an autopsy. I left Philly with a heavy heart and sadness in my life. It hung around like a robe that I could not take off.

When we returned to Denver I was at the doctor more often then I wanted to. Any time I didn’t think Kenzi was moving I was there. I thought I was leaking fluid, I was there. I saw my high risk OBGYN and she said that she believed 100% that Kenzi would make it. She didn’t believe for a minute I would not bring her home.

Then January 22, 2007 arrives and I wake up about 5 am with a hard stomach. I try to tell myself it is nothing. I don’t tell my husband something is wrong as he heads to court for a trial. I don’t tell my Mom who is staying with us. As the morning progresses I decided to “test” Kenzi and I shake my stomach as I have done in the past when I don’t think she is moving as much. I shake and she doesn’t move. I shake some more and I get scared, I start to cry and I pray. I know that one of my prayers has been answered.

Since we found out about Kenzi and my complications, I have been praying to God. I have asked God to take her if he really feels he needs her and not to have me make the choice between keeping her on life support or tubes and letting her go. (This is the God that I believe in and that has helped me through all the times in my life. Despite your religious views, this is how it was for me). I told my Mom we needed to go to the doctor and I called the doctor. The 20 minute drive to the doctor’s office was the longest of my life. I knew, I knew what they would say but I didn’t want to face it.

The moment of truth - I was in the room and the screen didn’t move. Kenzi was gone. My high risk OBGYN could not believe it. I knew she didn’t believe it. I didn’t want to believe it. I will never forget that moment as long as I live. I will never forget having to call my husband’s office and through tears tell his partner to get him out of court that Kenzi had died. She was gone is all I could get out.

The next 24 hours seemed to be in slow motion. I was wheeled over to Littleton Hospital with the hood of my sweater covering my tear stained face. My heart felt as if it had been pulled out of my chest and stomped on. Why me? Why my little girl? At this point I could not change what had happened. I wanted to have Kenzi and I wanted to have her now.

My labor was induced late in the morning/early afternoon. The nurses were very caring and supportive. The minister from the hospital came to visit and could not have been nicer. I was told that I needed to make a choice on what we’d like to do with her body once she was born. Who makes these choices for their infant? I should be picking out clothes and getting her room ready, not deciding what to do with her little body.

Kenzi would be cremated after an autopsy to see if they could tell me what happened to her and why she was taken from me. Could I have done something to save her? Could I have tried harder to keep her “safe”? Those are thoughts that consumed me as I filled out the paperwork with her name, the name of us – her parents. While I waited for my labor to begin that afternoon and evening I would experience waves of tremendous pain, grief, tears. Emotions and feelings that no other person in the room with me could understand. None of them had lost a child; none of them were still carrying their child who would be born sleeping.

As the contractions become stronger the nurses tell me that I can get an epidural. At first I say no because in my mind the labor could not be as painful as labor with a full term baby, Kenzi would not be more than two pounds. And the physical pain could not be worse than the emotional pain I was experiencing. However, I was wrong. The labor was just similar to my first and I decided that the epidural would help ease the physical pain but I knew would not even touch the emotional pain. As the night ended, I tried to sleep and couldn’t. I looked around the room and there was my husband, my mother and my aunt. Three amazing people by my side, seeing me in my worst hour, weak, sad, in pain and there was nothing they could do to help. I watched them sleep and wondered what they were thinking and feeling.

My husband was there to see the birth of his second child, his second daughter. A child we wanted, we loved and had to say goodbye to. My mother was there to support me, to meet her fifth grandchild and say goodbye. My aunt was there to see the birth of one of her many nieces, she was also there as a nurse. She would be the one who would take care of Kenzi after she was born. She would give her a bath, create Kenzi’s feet prints, dress her and bring her to me so I could say goodbye.

It was a little after 4 in the morning on January 23, 2007 that I woke everyone in the room and told them it was time. I got the nurse as well. I told her to get the doctor that Kenzi was coming and soon. The nurse told me not to push, I wasn’t pushing and she was coming. My regular OBGYN was barely in the room and ready before Kenzi arrived at 4:26 am. He announced, “It’s a Girl!” To this day I am not sure how I feel about that. I knew it was a girl however I would have to say goodbye and not take her home.

After I was taken care of and Kenzi was out of the room my husband and I waited, we waited to meet our daughter for the first time and to say our goodbyes. What do you say to someone you have loved from day one that will never come home with you? How do you decide how much time is enough when in reality there will never be enough time?

When my aunt brought Kenzi to me I could not believe how little she was. She was a little over 1 pound. A beautiful little angel who was 1 pound 2 ounces. This little one changed my life forever, more than anything ever could. I held her, I cried, I had pictures taken with her. I watched her father hold her and tell her goodbye. I watched her grandmother hold her and tell her goodbye. I held her again, I kissed her, I told her goodbye and I gave my baby, my precious Kenzi back to them to never see again. To never hold again, to never see grow up, to never hear laugh, to never hear cry, to never see go to school, never fall in love, never get married, never have babies, never, never, never.

I could not leave that day. I could not go home because I had an infection that we would later learn caused Kenzi’s to move too much and have a band wrap around her cord, causing her death. She did not suffer. That is the first question I was able to ask four months after I lost her when I spoke to the doctor her did her autopsy. “Did she suffer?” I had to ask, I had to know and he said no. “Could I have done something different to save her?” No was his answer again. The weight of the world fell off my shoulders and the blame left for the most part. I had been blaming myself for Kenzi’s death and now I knew I didn’t cause her to die. I wish I would have known both of us were infected so I could have gotten medication but I didn’t and couldn’t know.

In the three years since Kenzi has passed my life has never been the same. I am not the same person I was on January 21, 2007 and there is no way I could be. I lost a child. It does not matter that she did not take a breath on earth, it does not matter that she did not live a second. She is my child and she is gone. I am the mother of 4 not 3. I have 2 daughters not 1. I want people to understand that it does not matter that she was not born alive, I knew her, I loved her from the moment I knew I was pregnant, I wanted her, I still want her and I love her.

Dolls for Daughters was created in Kenzi’s memory to help me and my grief and to give back. Kenzi taught me a lesson I try to live by everyday – You never know someone’s struggles until you walk step for step, mile for mile in their shoes. Until then do not judge.

Strangers did not know that I had lost a child so they asked me when I was due only to learn I had lost my child. They did not know that when I had my oldest daughter with me that I was a mother of 2 at the time not 1. However they did not know the road I had taken.

The road I have been on since I lost Kenzi has been a challenging yet rewarding one. There are times when I think of Kenzi and I don’t cry and then there are times – like today – when the tears don’t seem to end and that my heart feels like it is being ripped out of me. I am so happy that because of Kenzi over 1800 children have had a toy at the holidays. I am so happy that Kenzi and her memory helped me create Dolls for Daughters and this year will launch Kenzi’s Kidz.

I did not do this alone; I did this with the amazing support of my husband, my children, my family, my friends and total strangers. It is my hope that through Dolls for Daughters others who have lost a child will be moved to give back either through Dolls for Daughters and Kenzi’s Kidz or in some other way. It is also my hope that we help raise awareness for infant loss and that people become aware of how painful it is even if the baby was born sleeping like Kenzi.

I love you Kenzi Bachus!

Love Mommy!

I look forward to seeing the movie. Thank you for sharing and starting the conversation.

Sincerely,

Jessica Bachus
Dolls for Daughters® & Kenzi’s Kidz Founder and Executive Director
www.DollsforDaughters.com

Posted in Uncategorized

Odhran and Daire’s Story

(This is a guest blog by Karen about her sons,Odhran and Daire. Thank you for sharing this with us, Karen.)

Twin-to-twin Transfusion Syndrome took the lives of our beautiful baby sons who were stillborn on 2nd March 2007.

My husband Gavin and I were so overjoyed when we found out we were pregnant and my son James cried with happiness at the thought of becoming a big brother. Both families were so delighted for us. The pregnancy was a nightmare right from the start – at 7 weeks I started bleeding heavily and I was told that perhaps I’d lost a twin as they could see a second sac but it was empty, the hospital then scanned me at 9 weeks and said that there was only one baby there.

We had our booking in appointment at 12 weeks and the midwife confirmed that we were having twins and she seen two babies!! Gavin and I couldn’t believe it were were shocked but so, so excited at having two little babies. James went from being happy to soooo happy and was jumping around like mad when he found out that he was having not one new brother or sister but two!

I went back to the hospital at 15 weeks and got to see a consultant who confirmed the twin pregnancy and even said that he’d seen a dividing membrane – we asked him to confirm if they were identical or non as we wanted to rule out any complications in identical twins as my nieces were identical and died shortly after being born – he said he was 100% sure they were non-identical…Gavin and I were relieved all but for a short while…

As the weeks went on I got more and more uncomfortable and I was diagnosed with SPD and was put on a support belt and crutches. My bump was getting so big and uncomfortable – I couldn’t even walk at times the pain was so bad. I rang the local maternity unit several times and explained to them how I was feeling and that I was pregnant with non-identical twins – each time I was told that the unit was very busy and I’d have a wait of about 4-6 hours to be seen they said the best thing to do if I wasn’t staining or wasn’t getting any contractions to take 2 paracetamol and go to bed! 7 weeks passed and at my 22 week antenatal, the doctor asked me if I was sure my dates were right as I was so big. I couldn’t even lie back on the bed to be scan and I had to be scanned sitting up.

After the scan he admitted me to the ward as he said that there was too much fluid round one of my twins. The next morning my own consultant (who I’d never met before then) took my hand and told me that my babies were very ill. My head swam – what was she talking about – i’d just seen them on a scan the day before and they were moving away. To me, their mummy, they looked perfect.

I was taken down for another scan and before we know it we were told about Twin To Twin Transfusion Syndrome (I’d never in my life heard of it) and that we would have to be transferred to another hospital. Being from Belfast we thought that that would be another local hospital or somewhere in the Republic of Ireland – they said that the operation could only be performed in St Georges in London.

We finally arrived at St Georges at approx 10.30pm on Sunday evening and had to find the patient accommodation. I waited outside the patient accommodation while Gavin tried to find someone to help us. By this time so late in the evening it was dark, I was tired, sore, frightened, anxious, crying lots and needed help…

After a restless sleep, after about half an hour of the receptionist not knowing who we were we finally seen one of the consultants. She scanned me and asked if we knew what sex our boys were, we told her we didn’t want to know as we were told they were non-identical and would be happy either way, she told us that she would have to tell us and after a scan she confirmed that yes I had twin-twin and we were having identical twin boys…and that our smaller twin was very ill.

Monday evening we were introduced to Dr B. who was to perform the surgery. I was wheeled into an operation theatre and given a “happy drug” which made me feel almost in a dream state. Whilst the operation was going in Gavin and I could see our babies on a tv screen right in front of our faces. Our sons, our babies, our world – right in front of us. Seeing little bits of their bodies, faces, hands, feet as the light from the camera searched for the right place to go – what a total surreal experience which was something that I will never erase from my mind. The surgery was performed and 3 litres of fluid drained away from me. We were told to come back Tuesday morning for a scan to see how the boys did.

During the time from the surgery until the next morning was so long. Gavin slept on a flat mattress on the bed next to me. We would have had to go back to patient accommodation if it wasn’t for Sandra the midwife who was looking after me insisted that I get a bed in the hospital. Thankfully she got me a private room, had she not I would have been on the ward with mothers and newborns.

Tuesday morning I couldn’t watch as Dr B. scanned me and I watched Gavin’s face crumble and he broke down crying as our fears became a reality – our smaller twin son didn’t survive… our other son needed a blood transfusion as he was anemic. Tuesday evening once again I lay on the bed while Dr B. performed the transfusion – after the second attempt Dr B. was pleased with the result and said that the transfusion was a success.

Gavin and I asked what happened next and we were told that their job was done and we could book our flights and go home, we were told that I should feel lots of movements now and that our surviving twin was going to be okay… We could only get a flight home on Wednesday. Again, we had the most horrific time travelling, I was in pain, I was nervous that my waters would break and mostly I was aware that one of my baby sons had died and the other was fighting for his life. Gavin and I wanted our family, we were emotion and frightened. As much as Gavin loves me and his sons and however much he protected us during the time in London he really didn’t deserve to carry the responsibility had anything happen to me during the travelling to and from London. We arrived home tired late Wed evening.

It was so good just to be home – however when I woke early on Thursday morning I turned to Gavin who was already awake, he was looking at my belly, I said to him that I knew that our surviving twin had died. He looked at me and knew not to question me – I told him I felt empty, that I felt lifeless that I knew our other son was gone – a mother just knows. After calling out our GP we were sent back to the hospital for confirmation it was confirmed what I already knew, our second baby boy had died.

I asked if I was to have a c-section – she said that I would have to be induced and give birth naturally. I screamed to her that I couldn’t do it, that to me labour was a special happy thrilling time. I just could not do it. We were then sent home so that evening we could plan with our family our babies funeral. We spent the evening with James and our parents. On Friday – 2nd March I woke up and took my time getting ready. My dad called to take us to the hospital to have my babies. I was so calm, I didn’t want to go back to hospital, as far as I was concerned my babies were where they were supposed to be, they were sleeping together in my womb, were they had been for the past 23 weeks.

At the hospital we were taken up to the labour ward and into a room where I later found out all the angels are born.

Our sons were born at 17.38 and 17.40 I had no idea what time of day it was or even if it was still morning or afternoon but in a weird way I knew the time – before I seen our sons for the first time I turned to the midwife and said to her ‘it’s 20 to 6 isn’t it’ my son James was born @ 17.39 – so his brothers were born either side of his birth time. I felt that he was in the room with them. Gavin and my mum were their when they came into the world. Gavin’s first borns, his sons, his babies, his reason for being. Gavin is James step father…

The midwife dressed the boys and handed them to me. I first thought that I would be frightened of them but when I seen our sons and held our sons in my arms I felt such a rush of love swell over me, words can’t explain how I felt; proud, overwhelmed, distraught, deflated, heartbroken, in love. I have never in my life seen such beautiful, perfect babies as our sons. Our smaller son, who was born first, we named Odhrán Kevin (pronounced Or-ran) and our bigger son we named Dairé John (pronounced Darrah). Odhrán looked so much like his big brother does when he is sleeping and Dairé looked so much Gavin! Perfection, beauty, pure, together…

The hardest thing was telling James that he wouldn’t be a big brother, he has a little understanding of death as my big brother Kevin died the year before from diabetes at just 34…

On Monday 5th of March we buried our beautiful sons with my grandparents, They were wrapped in James’ christening shawl. It was important to me that they were laid to rest with James’ shawl so that they always have their big brother close to them protecting them.

A few close friends and our immediate family stood at the graveside as Gavin carried his sons in a little white coffin and placed them with the care of my family in heaven.

That was the day my heart broke into pieces….

I don’t think I will ever ever be at peace… I’m consumed with guilt – why did I no just go to the hospital instead of ringing them, why did I not recognise the signs, why did I not get a second opinion when the boys were diagnosed as non-identical? So many questions that will never be answered, the only one Gavin and I can answer is that we know that Dairé didn’t want Odhrán being on his own and that’s why he went with him. We took one photograph of our sons and we have their tiny feet and handprints and a little blanket that covered them in the moses basket… I treasure it with all my heart. It’s all I have of them.

Our sons are loved beyond anything else in this world. They have very proud grandparents, aunts, uncles and cousins who were so excited about having two new babies in the family.

I spent 6 months in bed and not socialising with friends. The smallest word but the biggest question… WHY…

We now have a beautiful daughter called Grace who is 3, she is smart, beautiful, intelligent, fun, full of life and a non stop typial girl a chatter box. it wasn’t until Grace was placed in my arms and i heard her cry did part of my heart finally heal. My heart will always be broken – nothing can ever replace the devastating trauma of having two babies and not seeing them open their eyes, hear their cry, see their “firsts”…but yes life must go on and we learn to live a new “new”…

Posted in Guest Blog, Your Story

Janine’s Story

(This is a guest blog from Pauline about her daughter Janine. Thank you for sharing this with us, Pauline.)

My baby girl was born sleeping 37 years ago on march the 24th we named her Janine.

All those years ago if a baby didn’t take a breath you were not allowed to officially name your own baby. The day Janine was born started as a normal day. I was 3 weeks overdue and had been sent home from my antenatal vist once again to wait for labour to start naturally. That night I woke at 11 pm thinking my waters had broken but when I looked my bed was covered in blood and I was bleeding heavily. We rang for an ambulance and taken to hospital. I had no pains and the midwife who met us at the hospital said “the sooner this baby is born the better.”

I was taken to a room and a doctor was called. I was put on a monitor to check my babies heart and at that time the tracing was normal. The doctor decided to attach a machine to my babies head to to check on her but he dropped the machine and it broke no other machine was available. I was still bleeding but nothing was done for four hours. When the monitor attached to my abdomen started to show my baby was getting weaker they decided to take me to theatre to perform a c section. As I was waiting to be taken the doctor checked my babies heartbeat then a midwife checked I knew something was wrong and the doctor said ”Your baby is dead.”

I was distraught and asked what would happen now he said ”You will be taken back and give birth I won’t do a c section for a dead baby.”

I was taken back to my room my husband walked in he had been told our baby had died but not that I had still to give birth. As you can imagine we were both sobbing he said ”at least the birth is over.”

I then had to tell him myself that I still had to deliver the baby. My husband had to leave the room as fathers could not stay all those years ago. I was placed on a drip to speed the contractions and given pain relief. My little girl was born to a silent room and put into a tin oval shaped baby bath.

I was not allowed to see my baby and the only thing I saw of her was her back as the put her in. Janine was taken away and I never saw her, never held her. She was gone forever and even now all these years later I think about her everyday. The damage that was caused to myself and my family by the treatment we received has been never ending.

Please if one thing comes from your film let it be to teach all medical staff to treat parents at this devastating time how to care for them and to be kind and please give them the chance to hold their baby for the first and last time.

Posted in Guest Blog, Your Story

Tristen and Theodore’s Story

(This is a guest blog by Tracy about Tristen and Theodore. Thank you very much for sharing this with us, Tracy.)

Ever since I was a little girl I imagined what I would be like as a Mumma, Mommy, Mother and Mom. Each one of those terms comes with a different set of standards and expectations.

On July 26, 2004, Erik and I met our daughter, Teagan Patia Roberts, and our journey of parenthood began. She was a healthy 8 lbs and 15 oz, and was 21 inches long. My pregnancy with Teagan was great until the very end. I was on bed-rest for the last six weeks because of high blood pressure.

We had been trying to get pregnant with our second child and nine months in, January of 2008, we were pleasantly surprised to find out we were pregnant. We were very excited about the pregnancy and the possibilities of a newborn with a four year old. We flew to Florida to surprise my Mom for her 80th birthday and told her that we were pregnant again.

The excitement grew as we began the pregnancy. At our first appointment, at eight and 1/2 weeks, we were able to hear the heartbeat and see our little peanut on the screen of the ultrasound machine. Twins run in my family and I made it a point to ask the doctor if there were two babies in there. He assured me there was only one.

Our second appointment went smoothly. We only heard the heartbeat, asked some questions, and we left. We scheduled our first “real” ultrasound for week 14 with the technician. We were excited to see the baby as it would look so much different than it did at week eight. As I was lying on the table, Erik standing next to me and Teagan rocking in the chair, we looked up at the screen on the wall. Since our first ultrasound, our doctor had upgraded to a new machine and things were really easy to see. We saw two round things. Erik looked at me and I looked at him, and he said, “Please tell me that is its head and its butt?” Amy, our ultrasound tech said, “Oh, you guys didn’t know you were having twins?” “What?” we said in unison. “Holy shit! We are having two!” I said as tears were running down my face. Erik was in shock. Teagan handed me a tissue and said, “Please don’t say that word Mumma, it’s a bad word and don’t cry, it’s a happy time!” Our Tech did some more measuring and told us that she was almost certain we were having boys. I kept saying, “But the doctor assured me we were only having one! What happened?”

Becoming the parents of twins was an exhausting job. As soon as we left the doctor’s office we began making phone calls and looking at our picture of their heads. When we called friends and family and told them we were having “boys”, most responded with, “Did you say boys… as in two?”

Scared was not even a word to describe how we felt about twins. We lived in a 700 square foot, two-bedroom house with a three-year-old and a 100-pound dog. After the shock of twins subsided a bit (not much) we formulated a plan and started to figure out how we were going to adjust from a family of three to a family of five. Life was great, we were moving along and I felt good. I was looking huge for being five months pregnant and the boys were moving.

When we were pregnant with Teagan we lived in North Carolina, away from our family, so we were very happy to be really close with our family during this pregnancy. We scheduled our “big” ultrasound for the hospital (this is the ultrasound to confirm that the twins were boys and to get their measurements.) It is a very common ultrasound that many doctors recommend. It was not supposed to be a big deal.

We invited Erik’s mom to the ultrasound because when I was pregnant with Teagan she was not around to attend any of the doctor’s appointment. The ultrasound was scheduled for Friday, May 9th, 2008; Erik and I were really excited to see our Boys again as it had been about a month since we found out how much our lives were changing.

When I got to work in the morning I could feel them moving around and I was eagerly telling my co-workers that I would have updated ultrasound pictures on Monday. Erik’s mom picked me up from school and we drove together to the hospital. Erik and Teagan met us there. The day was beautiful, an early May afternoon, the Friday before Mother’s Day. While we were waiting to be called into a room, the news was on the TV and a mother and child had been struck by a car while they were crossing an intersection. Both were okay except for minor injuries, but I remember thinking how awful that must be as a parent to have to go through something like that. We were then sent to our room. As soon as the ultrasound technician started we saw our Boys on the screen. She looked at them and looked at me and said, “Your bladder is really full, why don’t you use the bathroom and come on back in.” As she showed me the bathroom she walked into another room. I was so happy to see those boys on the screen; I couldn’t get out of the bathroom quickly enough!

When I returned to the room there was a doctor in the room and he took over the exam. He placed the wand on my stomach and looked at his screen as we all looked at the TV on the wall. THERE THEY WERE!!! Tangled up together and lovely… little legs and little arms…. I was so glad to see them, yet so blind at the same time. The doctor looked at us and said, “I’m sorry, but your babies don’t have heartbeats.”

“What?”

“I’m sorry but your babies are no longer alive.”

“No, they’re just sleeping!” I said back to the doctor.

At this point we are both confused and Erik said to the doctor, “Only one, or both of them?”

“I’m sorry, but both.”

I didn’t know what to do and I felt as though I was going into shock at that point. Teagan was crying and asking what was going on?

I didn’t know what was going on… This wasn’t supposed to happen to me!?! I made it past three months and everything was supposed to be fine. They never told me that my babies could die.

My mother-in-law is the most fabulous woman in the world and, although she was in shock, she was able to pick up the pieces that Erik and I could not. She gathered Teagan, who was crying, and was able to get her to leave the room by offering her ice cream. Looking back on that moment I am able to understand what it truly means to be a Mother.

We were led into a room with a phone on the wall and our doctor called us. We were given a few different options about their delivery. I didn’t want options; I wanted my Boys’ alive. I wanted the last four + months of my pregnancy. Instead we were given three options. The first was to be admitted immediately and start the process of induction. This was too much for us as a family. We needed to make plans for Teagan, for each other (we both work in schools) and our dog, Loki. Option two was to visit a doctor in Detroit and have the Boys vacuumed extracted. Option three was to return home and come back on Monday for an induction.

All I remember about that moment was being completely numb and angry. I was angry because my body failed and there was nothing that I could do about it. All I wanted was for the Boys to be out of me, and this nightmare to be over. I didn’t know what to do or how to think; everything was so surreal. We drove home, and as we pulled into the driveway I noticed a long white box sticking out of the doorway. Inside the box was a beautiful bouquet of flowers from my best friend, Sarah. The card read, “Happy Mother’s Day Chicken! Keep those feet up and relax, because once those Boys get here you won’t have the time!” How badly I didn’t want to go through to the next phase.

Later that evening, I remember thinking… I don’t want to see them, I don’t want to hold them, I don’t want to name them and I don’t even want to go through this process. Why do I have to deliver them? Is this some sick joke that someone is playing on me? I just kept thinking that I was going to wake up and everything was going to be fine. After taking many deep breathes and talking to my best friend’s mom Marlene, who is a labor and delivery nurse, I found out that this DOES happen frequently. Through the tears she explained to me what those three options really meant. Erik and I choose option three. We were told that the pitocin may take up to three days to soften the cervix, and it could be a really lengthy process. Marlene also suggested that we hold the Boys—to see them and say our good-byes.

We hunkered down at Erik’s parents’ house for the weekend to think and try to figure out why this happened. I kept thinking that the ultrasound machine was broken and on Monday we would see their heartbeats. I don’t think that I have ever cried so hard for so long. I couldn’t sleep, couldn’t eat, didn’t shower and couldn’t talk to anyone. I was in complete denial. I couldn’t lie down to sleep because every time I rolled over, I felt them rolling around inside of me. What little sleep I did get those days was done sitting up.

Monday May 12th, we drove to the hospital in silence; it was still dark when we arrived. We decided as a family that Erik, myself, and my best friend, Sarah, were going to be the only ones there for the delivery and after. At some point, Meemo, Erik’s mom was going to come up and see the Boys. As we approached the labor and delivery desk, the nurse behind the counter cheerfully said, “Are you here for delivery?” I lost it at that point as we were escorted to our delivery room. From speaking with Marlene, we knew that social work services were going to be coming to see us at some point. We asked them to come before I started taking any sort of medicine. I just wanted that part taken care of. I wanted to know what was going to happen with the Boys’ after they were delivered.

When the social worker arrived, we were given a folder full of information that neither of us really read at that time. We were also told of the Child Remembered Program, through Roseland Park Cemetery. We chose to have the Boys taken there after their delivery. We also were visited by Beaumont’s “God Squad” and asked if we would like to see someone when the Boys arrived. I don’t really remember too much after that meeting because I requested as much pain medicine as I could. Erik has since filled me in on the rest of our hospital experience.

The Boys were born still on May 13th, at 4:00 am. They arrived one right after the other. The staff was very considerate and accommodating with our loss. They gave us our privacy; they wrapped the Boys in blankets and put knitted caps on their tiny heads. I had some complications during the delivery and had to have an emergency D and C. It wasn’t until after the surgery that I held them. They were so tiny, and they each had ten little fingers and ten little toes. I kissed their faces, and caressed their arms. At this point we still had not named them.

We left the hospital the following day and reality set in… We arrived as four and left as two with some pictures and boxes. What was I to do at this point? I had been taking all sorts of pain medicine but now, just two days later, I am supposed to leave as if nothing had happened? Who would I talk to? What would I say? Could I really tell someone how I was feeling if they asked, “How are you?” I didn’t understand life at this point. We had just suffered a huge tragedy and the world was moving on. I wanted so badly to be a part of the moving on. However, I was still deeply in my grief.

I stayed home for two weeks after the Boys were born and spent the majority of that time crying and sleeping. I rarely answered the phone; if it wasn’t for Sarah I don’t think that I would have had any outside interaction with people.

I needed to talk to people who understood, who knew, who had suffered and were farther along in their grief than I was at this point. I needed to know that life got more tolerable, and that it was okay to be in the state that I was in. Erik and I started attending the grief group, Looking Ahead, at Beaumont. Our first session happened to be June 10th. I have met so many people with similar stories and similar grief through the group. Then in August, the man who raised me, Uncle Keith, died suddenly of a heart attack. So not only was I grieving the loss of my children, I was also grieving the loss of my father figure.

In September we found out that we were pregnant again and I was filled with every emotion possible. The group was/is my sanctuary. I felt safe to have those feelings and it gave me the strength I needed. I have been attending the group regularly ever since.

In January of 2009, Anna LaFountain attended our group for the first time and spoke of a way to honor our babies. I immediately jumped on board and in four short weeks we put together our 1st annual Angel Kisses fundraiser in February of 2009. I think about my Boys regularly and, through my pregnancy with my now five-month-old son, Aiken, I have come to accept my grief as a part of life. We named our Boys Theodore Holden and Tristen Jeffrey.

It doesn’t get easier… just more tolerable. Some days it is easier than others.

If you have questions or comments, you can contact Tracy at [email protected].

COPYRIGHT © 2012 ANGEL KISSES. ALL RIGHTS RESERVED.

Posted in Guest Blog, Support Groups, Your Story

Alana Marie’s Story

(This is a guest blog about Alana Marie from her mother, Elizabeth. Thank you for sharing this story and the beautiful pictures with us, Elizabeth.)

I just want to tell you thank you from the bottom of my heart for making this movie.

I lost my daughter Alana Marie Croes when I was 27 weeks pregnant. My pregnancy had been perfect up till 11/11/12 when I noticed I hadn’t felt any movement in two days. I kept thinking it was all in my head and because I was so busy finishing the nursery the last two days that I just didn’t feel them.

I tried all the tricks to get her to kick and nothing. My husband took me to the ER, the whole drive I kept thinking that as soon as we get there they will find her heartbeat and I will feel like the crazy pregnant lady. When they checked for her heart beat they couldn’t find it and as soon as my doctor got there they did an ultrasound. I kept praying that he would tell me she is fine and that she was just laying weird. I could tell it was not going to be good because it took so long.

My doctor said “I’m sorry there is no heart beat.” I yelled “no” and lost it. My doctor brought us back to a room and told us our options. Since we are from a very small town we had to drive 2 1/2 hours to get to the hospital where I would be induced and have my baby. I then had to call my family at tell them we lost our baby, to say out loud “we lost the baby” was something I never thought I would ever have to say.

I am so thankful we had amazing nurses that talking us through everything and made us feel as comfortable as we could. We were told about NILMDTS (Now I Lay Me Down To Sleep) and how they would send a photographer to the hospital if we waned to take pictures after our baby was born. I knew I wanted pictures of my daughter so we agreed.

At 4:27am on 11/12/12 my angel was born. My husband and sister were in the room while I delivered her and my mom came in right after she was born. The photographer was there from 4:30am to 9am and took the most beautiful priceless pictures, and was able to take pictures of her being baptized. The moment they put her in my arms I felt a love I had never felt before. My husband and I held her, rocked her, kissed her and talked to her.

Four hours after she was born I had to say goodbye and kiss my baby for the last time. Knowing it was the last time I was going to kiss my baby ripped my heart apart.

I told her that her Mommy and Daddy love her more then she will ever know and one day we will join her in heaven and hold her again.

We then had to so something no parent should ever do. We have to start planning our babies funeral. My family and friends have been so supportive and I know without them and without the support from my husband I wouldn’t have made it though the first week. I miss my daughter every day and I still pray that I will wake up from this nightmare and feel her kick.

Thank you again for breaking the silence.

- Elizabeth Croes

Posted in Guest Blog, Support Groups, Your Story

Grayson’s Story

(This is a guest blog about Grayson from his mother, Megan. Thanks for sharing this with us, Megan.)

September 24th, 2011. My husband and I got married. Since the beginning he wanted another child, but I made the promise to myself-I wanted to wait until I was married to have a baby. So we waited. And we tried. And tried. And tried.

Finally, Thursday, March 8th, 2012, I got that positive test I had been hoping for since September. I was so completely over the moon. It was unreal. Everyone was excited, my family especially. After telling everyone, it was time to make the appointment and play the waiting game for my first baby appointment. On that date I found out I had a totally healthy, itty bitty 8 week, 3 day old little shrimp! Grayson’s dad, and big brother were also at that appointment, and it was so awesome we got to share that first moment of seeing our new baby! His heart beat was loud and strong, and looked great. Again, nothing made me happier then knowing that everything was going well with this baby shrimp I had.

I’ve been a type one diabetic since I was about 4 years old. Knowing that I would be considered high risk, I was told at this point, to be prepared for 2 monthly doctors appointments. I was very okay with that due to the fact I would be getting to see my baby every month with an ultrasound. And that’s what we did.

Almost a month later we had went back and still found out 12 week old B. Schrat growing big and strong! He grew a face in that short months, and as a momma, that has to be the cutest face I’ve ever seen! And then we moved on to the next appointment! Which was the gender reveal! At my 18 week appointment, we found out we were having a boy! Everyone thought I would be having a girl, including myself, but as soon as the nurse put the wand on my belly, I blurted out ‘Boy!’.

At first I was a little disappointed that I wouldn’t be having a girl, but after awhile, I started to love the idea of having a Momma’s boy. The day after that appointment, my husband and I decided on the name Grayson V. Justin, my husband is a huge batman fan. Unbelievebly huge. He has tattoo’s and toys, and posters, and shirts. Huge fan. We were discussing different DC Comic character names, and I couldn’t agree on anything with him. The next day he texted me and asked how I felt about Grayson V. And I fell in love. I never looked at another name after that.

Grayson comes from Dick Grayson, who is actually Robin, but grown up into Nightwing. And V comes from one of our favorite movies (that we never realized was a DC caracter) the movie V for Vendetta. I’ve never been so in love with a name before. Or a person I had never met.

24 perfect weeks came and went. His body and heart grew bigger and stronger, and our amazingly little active man kicked away all the time.When I hit week 26 all i could think about is how close we were to meeting Grayson! We started doing things like buying his crib and moving his brother, Aidans room around to be able to fit in him.

Things were great. I was feeling great, baby was doing great. I had never been happier in my life!

September 5th I had my last ultrasound appoitment. He’s 30 weeks old in this one. I was so excited when I had got this adorable 3D picture from the nurse. I just sat there and stared at my little mans face, thinking ‘This is mine. I made him. This is MY baby!’ So incredibly in love. I thought about him playing with his big brother, and his best friend Lycan. I thought about how I was just about ready to meet my love. Once again, he was growing perfectly well. He was moving, and kicking, and practicing his breathing. Everything a normal 30 week old does. I had started to go and get 2 Non-Stress Tests to make sure baby’s heart was going well. And it was.

September 19th, I just started to feel odd. We had went out to dinner, and I just sat in the booth and cried because of not feeling that great. Later, I had got a huge, massive headache that didnt go away. Later into the weekend, things only managed to get worse, with me throwing up, and going into a panic attack. My last doctors appoitment was on September 21st. I had been in contact with the doctor since the 19th, and while doing my NST at the doctors, they told me everything was fine. Grayson was fine, and I might have just been getting sick. I went on my way.

My 1 year anniversy with my husband was on the 24th, Monday, and we had planned on going out to celebrate. Since it wouldnt be possible to do it Monday, as I was still feeling sick, I told my husband no. On Sunday the 23rd, Grayson wasnt moving around like he usually does. He would give me a few hard kicks, and moves, and rolls but Sunday, I didnt get that all day.

Around 7 I had went in and layed down in the bathtub. I got two jabs, and then nothing. Not too long after that I had went to bed. I woke up around 7 the new morning and still didnt feel him move. I knew something wasnt right. I talked to Justin, and called my mom, and they said if I didnt feel anything within the next hour to go to the doctors. So I had did all my stuff for the day, got ready, and then took Aidan down to the bus stop.

The whole time I was hoping I’d get a jab or a kick…anything. I dropped off Aidan and then drove to the hospital and went into Labor and Delievery. I told them my name, due date and my issue. They took me back and tried to find his heart beat. They said they had found it and how it just sounded weird, like there was an echo to it. But everything seemed fine. We were joking and laughing around at how when I have Grayson he gets a spankin for giving his momma a heart attack.

Then a doctor had came in, and used the ultrasound machine to try to understand what the echo was. I thought he was fine. I thought everything was still perfect. But I was so wrong. They had yet another doctor come in and he looked too… He looked over, and put his hand on my hand, and told me the worst words ANY parent should hear.

He said “Megan, I’m so sorry, but we’ve lost him”. And I just laid there. “lost him”? How can I just “lose” a baby, that was perfect on Friday? And of all days, my anniversary? Nothing made any sense at all. They took me into get a stronger ultrasound, and conformed it, I had lost my son. At 33 weeks, 4 days.

I asked to call my husband and my mom, and since both were over an hour away, my nurse stayed with me the whole time. I was numb…or in shock. Just… Nothing came out. What do I even do at this point?

After my mom and husband came I found out that I had to give birth to Grayson. At that point, they wouldn’t do a c-section and he was too big for other options. I had to be induced. I was given pills to start labor, and made to spend the night in the hospital. Everyone in my entire family had came to support Justin and I. That was so great. They were able to keep me distracted enough that I didn’t have to sit there alone and think. But I did think. I thought about how I will never get to tuck Grayson into the bassinet we already had set up for him. Or that he wouldn’t get to wear the thanksgiving onesie I bought. Or how I wouldn’t be able to cuddle him in the comfy part of my couch, and let the dogs sit beside us. I wouldn’t be able to do anything with the child I had loved so much. The child I had dreamed for, prayed for and loved before I even knew he existed…

Instead I had to think about what I wanted to do with my unborn son’s body before I ever laid eyes on him… I ended up being in labor for over 11 hours with Grayson and pushed for about 45 minutes. And then I seen the most gorgeous boy I’ve ever seen. My son.

After I had him I was able to give him a bath, and dress him up in the outfit I had originally planned on taking him home in. Such a bitter sweet moment, but not how I would have liked it. After that we had an amazingly sweet photographer, who works with Now I Lay Me Down To Sleep come in and capture a few of the moments we will never get to have with Grayson again.

That is one of the best gifts someone could ever give a parent at this time. So beautiful. We got to hold Grayson and cuddle him, and keep him close to us until the time I was discharged.

But I hold everything that is his so close to me, that its unreal. From the comb I used to comb all that thick, blonde hair to the blankets he was wrapped in. Grayson will NEVER be gone to me, and I know hes constantly here with me. I am still so madly, and deeply in love with this little man, that its unreal.

Grayson V Schratwieser
September 25th, 2012 - Forever <3

Posted in Guest Blog, Your Story

Dylan’s Story

(This is a guest blog about Dylan by his mother, Joanna. Thanks for sharing this with us, Joanna.)

I wanted to thank you for making this movie and telling your story. This is our story:

To paraphrase, the classic poem says that our lives are represented by our “dash,” by that time between our birth and our death. It is this time that matters; it is this time that “counts.” (http://lindaellis.net/the-dash-poem-by-linda-ellis/)

My son, Dylan, has a “dash,” but instead of it being the time between his birth and his death, his dash represents the time between his death and his birth.

His dash is full of sorrow and pain and love. Is that all that matters? No. For him, his life is much more than his dash.

His dash is missing the rest of what matters—the happiness, joy, and laughter that balance out the sorrow and pain. This doesn’t mean that his life is missing this light. His life, before and after his “dash,” was much too short, but it was full of happiness, love, and joy.
Dylan’s brief life included the nervous joy of finding out on my birthday that we were expecting our third child.

Dylan’s life included the breath of relief when we passed the 12-week “safe” mark. His life included the thrill and excitement of telling his older brothers that a new baby would be joining our family to make us complete.

Dylan’s short life included the warm comfort of the 20-week ultrasound telling us that all was well and the slight trepidation of learning that we would have a house full of boys.

Dylan’s life included his first Christmas, surrounded by the love and warmth of his family and friends. We were given decorations for his nursery that we would never finish and tiny outfits that he would never wear. We laughed and looked forward to celebrating the next Christmas with three boys, instead of just two.

We were granted another sneak peek of our precious Dylan at 28 weeks with a follow-up ultrasound that showed that all was still well. Our sweet, healthy baby was growing like a weed. We laughed and played as he rolled and kicked inside me. We giggled when his 2-year-old brother pretended that he, too, had a baby inside. We snuggled together as a family of five.

At 34 weeks, we breathed our final sigh of relief knowing that we were truly at the “safe” point in our pregnancy. We knew that babies born at 34 weeks have a great chance of survival, so our house was filled with joy and happiness. We washed the tiny clothes from Christmas. Dylan’s brothers helped fill his drawers with his clothes, blankets, diapers, and love. For three more days, our lives were simple and complete. Dylan was alive.

The night he died, Dylan was a bit quiet, but we snuggled and we played. As a family, we went out to dinner with his uncle and Grandma. I drifted off to sleep with him sleeping inside me.

The next morning we learned he had died at 34 ½ weeks. He died while I was sleeping.

We filled his dash with the horror on the face of the sonographer; the sadness from the doctor and nurse; the coldness of the tile floor as I curled up on it, unable to move; the primal screams from his father; the tears from our family. We also filled his dash with all of the love that we could bear. We filled it with the songs we sang to him; the visits from friends and family; the care and support as our community mobilized to hold us afloat. We filled his dash with a lifetime of love and of suffering.

So his life is in his dash. In the love and pain and sorrow. But his life is also in the time before and after. His life is the 34 ½ weeks he was living inside me. His life is also in the 10 months his body has been gone from mine. As a family, we laugh and we cry. We feel joy and sorrow. We talk warmly of Dylan and the happiness he brought us. We weep together at the hole he has left behind. We will never know why he died, but we will always know that he lived. He lived and he lives still. He was born and he was born still.

Again, thank you so much for making this movie. I am continually amazed by the silence surrounding stillbirth, even from friends and family. This movie is a huge first step towards opening the door to the hard conversation about the death of an unborn child.

Best,

Joanna

Posted in Guest Blog, Your Story

Brianna’s Story

(This is a guest blog about Brianna from her mother, Karen. Thank you for sharing this with us, Karen!)

Brianna was our 4th and going to be our last child as we were nearing our 30′s and already had 3 older sons. I had dreamed of a little girl for years. My pregnancies with my sons were pretty much uneventful. With my youngest son towards the end my fluid levels kept dipping so I had a non-stress test and weekly ultrasounds. They ended up inducing me what they thought was a week early since he was so big and they thought I was further along but I was 2 weeks early. He was as healthy as can be (just big, 9lbs 15oz!)

I told this part because it does have something to do with Brianna. Eight years later on the morning of a friend of mine’s wedding we were going to we found out I was pregnant! That was on May 21st, 2011. This pregnancy was so much different than my other ones. I kept getting dizzy spells, totally lost my taste of coffee, was so, so nauseous. But all that didn’t matter I was just so happy!

My pregnancy was going wonderfully. At my anatomy scan on August 19th I found out we were going to have a daughter!! My sister wanted to go since she had never been to any ultrasounds before but my husband had to work. I was in so much shock…. I couldn’t believe I was finally getting my little girl! I had to schedule another ultrasound since they couldn’t get a good view of her heart though.

All of my appointments were great, we were both healthy. The week of Sept. 20th I noticed she wasn’t moving as much. I just brushed it off at first since I was only 23 week along and not feeling strong, regular movements yet. Towards the end of the week I started getting scared. My husband kept reassuring me that maybe she flipped over and was just hard to feel.

That sat. the 24th was my sister’s bachelorette party (of course, no drinks for me). When I went to bed that night I thought I felt some movement finally so I started feeling a little better. The next day I was sitting on the couch and thought I felt a jab in my back on the side so that reassured me more.

Two weeks later on Friday October 7th was my sister’s wedding day and my other ultrasound, which my husband was able to go to. We were both in the wedding as well as our sons so we did a lot of rushing around so we could get to the hotel on time. We got to the doctor’s office and there was a little wait but we were doing fine with time. I remember this woman came in, very pregnant, with her 7 or 8 children. I remember thinking, man I couldn’t do that and still be sane!

We finally got called back and I was so excited because my husband was going to see our little girl as a girl. The ultrasound tech placed the wand on my belly and we didn’t hear anything but I just thought the volume was turned down. She then proceeded to ask if I noticed a lot of leaking of fluid and if I’ve felt my baby move. She said she was going to get my midwife to double check.

She came back what seemed like hours later with my midwife and the doctor that was on call for the weekend. They all just looked and right away said we lost her. It had looked like she passed a week or two ago. I was already in tears because I sort of already knew before they came back to confirm it.

I was 25 weeks along. I lost all of the fluid. I still wanted to go to my sister’s wedding, I didn’t want to ruin her day too. But before I left they all talked me out of going. I decided to get induced that afternoon. I tried to stop crying long enough to make the long trek back to the car. But as soon as I reached the waiting room and saw that woman there with all of her kids I lost it and ran out the door.

As soon as we got home I took all of my clothes off in the bathroom and took all, every single maternity item and threw them into a tote of baby clothes we had dug up a week ago to go through. I never wanted to see them ever again. I got into bed and was done. My boys knew something was wrong and I could hear them in the other room trying to talk quietly, saying they think the baby died.

We were set to be back to the hospital by 2:30p to start the induction, My dad and stepmom and stepbrother had come out for my sister’s wedding so my dad came by to pick up the boys. I sat on the hallway stairs while they got ready. I tried to smile and joke around with my dad so he wouldn’t worry so much. All the while I was dying slowly inside. After the boys left we packed a bag and went to the hospital. We stopped on the way since my hubby was starving. I had no appetite at all.

We were greeted on L&D by a wonderful nurse who herself has been through this twice. Got settled and talked about what we wanted with the birth and after. I just kept telling her to knock me out however they wanted, I DID NOT want to go through this. She said I can have any kind of pain relief anytime I wanted it. Asked if we wanted to see our daughter and encouraged us to see her and to get pictures of her. She asked what our daughter’s name is and my husband, who in the months past wanted a “not too girly of a name” and didn’t like my favorite name Brianna, told the nurse her name is Brianna.

After all that she started my induction at 3p with cytotec. She said I would get two pills every 6 hours until I had her. In the meantime we agreed to not tell my sister why we weren’t able to be there so she kept calling and texting me. I felt like the worst human being ever. I wasn’t there for my sister, I lost our daughter. I remember watching the Simpsons later on and the two episodes that were on were wedding ones. That wasn’t a kick to the gut.

My parents and stepbrother came by after the wedding about 11p or 12a and visited a short while. My stepmom told me she lost her first baby too during pregnancy. She was almost full term and I think it was a cord accident. It was a little girl. After they left I tried to go to sleep for a little bit.

By around 215a or so I started feeling very bad pains. I tried to hold out for as long as I could but gave up and called the nurse in, I wanted an epidural. Got it in and sat up for maybe a minute then my hubby helped get my legs back in bed and as soon as I was in bed my daughter came out.

Brianna was born at 2:55am on Sat. October 8, 2011. She was 1 pound 5 ounces and 11 inches long. She was perfectly healthy. They found I had an infection but we don’t know what kind or if I lost my fluid first or the infection caused it.

I held her for 7 hours straight after I had her. I held her hand with my pinky on my left hand. I kissed her a few times on her forehead. I talked to her about how much she was loved and how much we miss her. The one thing I regret so much was not taking pictures of her beautiful hands or getting a picture of her and me and of daddy and her. I will forever regret that.

We had to make arrangements for her before we left the hospital. I chose the funeral home and chose to have her cremated. I held her when she came back from pictures until 11a when the nurse came in to say they had to take her to be picked up.

That was THE hardest goodbye. Even now, I long to have her here, in my arms where she belongs. Not a day goes by when I don’t think about her. I am apart of two different loss boards on baby websites and without them, I don’t know where I’d be today. My boys also get me through each day.

I want to thank you for giving all us baby loss parents a place to tell our story and for helping us break the silence of baby loss. I am so sorry anybody has to know what it’s like to lose a baby.

Posted in Guest Blog, Your Story

Sadie’s Story

(This is a guest blog by Marie about her daughter Sadie. Thank you for sharing this with us Marie.)

I just found out about “Return to Zero” yesterday, and I am so touched by all of the stories that are being shared on your site. I thought I would share my own story. I have also attached a few pictures and a link to a song that I wrote for Sadie, which my brother performed at her burial service (and then recorded for me), you are welcome to include them as well if you decide to use my story on your site, which I hope you will… Just because something feels good about putting it out there. Thanks for your time and your efforts in bringing awareness to this kind of tragedy. -Marie Hughes

My baby girl, Sadie Jane Hughes, was stillborn on June 19th, 2012 at 4:01pm. I was 36 weeks and 6 days pregnant. She was 6 lbs. 2 oz. and 19.5 inches of pure perfection. We found out that Sadie had died on a Monday night. I didn’t feel Sadie moving, at least not the way that she usually did… it seemed like I could feel something, but I didn’t get any distinct movements when I did my kick counts, even after drinking a big glass of orange juice… so we called the answering service and Dr. Roberts called us back and told us to go into the hospital.

We had just seen Dr. Roberts the previous Friday…and we had seen Sadie because we had a biophysical profile that day. She got a perfect score. I still don’t feel good about that score, but that’s another story… and hindsight is 20/20, I guess… nobody thought there was anything wrong… everyone was glad I was past the 36 week mark, especially me. I felt like it was a real victory, and we were out of the danger zone…I was so happy and so excited.

Anyway, we drove to the hospital without too much real fear. We were pretty sure I was overreacting… she was just sleeping, just running out of space… the ultrasound tech said on Friday that she had started to move down, and that was probably why things were harder to feel… my placenta was in front, and I had been told that could also make it harder to feel… certainly, nothing could be really wrong, but still.

We knew the drill when we got there – we’d been sent to the hospital three times in the past month and a half, twice to triage. We were just a few minutes from a sigh of relief. I think that we might have been the only people in triage that evening, but of course I could be wrong – for sure it was not bustling with activity. We were very quickly getting the monitor strapped across my stomach, like we had so many times before… usually they could find her heartbeat fast, no problem, but a couple times before it had taken a few seconds longer than you want it to… so we felt like any second, we’d hear that familiar, comforting, beautiful sound of Sadie’s sweet little heart beating.

But we didn’t. At one point, there was a heartbeat, but it was my own. It felt like time was standing still and we were looking in on our worst nightmare from outside our bodies.

I just can’t even describe those minutes. I couldn’t tell you how long it was. An ultrasound tech came in… my husband could see the ultrasound screen, but I couldn’t… so I was watching his face, watching the screen… seeing in his eyes confirmation of the unimaginable… it was truly the worst moment of my life, without any close seconds.

When I think about that night, I really can’t even believe I didn’t just kill myself. Dave knew what that little blinking heart looked like, and there was nothing…just still…we knew, but nobody could say it out loud. We had to wait…not long, or really long? – I am not sure at all of how much time elapsed before Dr. Roberts came and confirmed that Sadie was dead.

I really love Dr. Roberts and have nothing but good things to say about her as a doctor and as a person, but that night, she was the grim reaper, and I still have nightmares about her telling us. She let us know that we had options – we could have a c-section right now, be done with everything within the hour… we could come back for a c-section tomorrow… or we could get induced tonight… or we could go home and come back to be induced tomorrow.

Dave and I talked about what we wanted to do for a few minutes…and decided to go home and return the next day to be induced. I needed one more night with my baby inside of me, and I needed to try to give birth to her… I had been anticipating that experience for so long…for years really, but certainly very much during my pregnancy… we had taken Bradley childbirth classes. I had read every book under the sun. I wanted to give birth to my baby girl. So we went home… our empty just-installed car seat behind us… to an agonizing night of terror and the most excruciating sadness and despair. Home to our dining room that was still filled with all sorts of baby shower presents not yet put into their place.

But I am glad we went home. We didn’t know how to prepare ourselves… should we bring a camera? Clothes for her? Is this all just morbid? But we decided yes, we would bring the camera and a special onesie that I had picked out soon after I found out I was having a girl, and we brought a pink baby Gund teddy bear for her too. And then we drove to the hospital, knowing that we were about to go through the hardest experience of our lives.

Our nurses and doctors were an enormous source of support and compassion while we were at the hospital. I can’t even begin to express how grateful we felt then and still feel now. Brunie, our nurse during the delivery, and Dr. Garvey… they were just amazing, and they helped to make Sadie’s birth a beautiful experience that I truly just cherish so much and will forever.

It was so sad and surreal, but it was so incredible to give birth, and despite the tragedy that we were in the midst of, Dave and I were able to experience something so special that day. My husband was just of course by my side throughout—as he had been throughout my entire pregnancy… and I just felt his love so powerfully getting me through, feeling my pain and pushing through his own to be strong for me and for Sadie. He knew how much I wanted to deliver her, and he, and Brunie, and Dr. Garvey… they were all just amazing, and they gave me the strength that I needed.

I look back on Sadie’s birth with pride… it was as perfect as it could ever be, given the circumstances. I really appreciate that everyone seemed to understand that this was a profound and miraculous moment, not just a means to an end. I didn’t want to get it over with—I wanted to savor this magical process of becoming a mom, and Dave becoming a dad.

We saw Sadie soon after I delivered her, which was at 4:01pm. When she was placed in my arms, my husband at my side, we just melted and fell in love even more with her, with each other… she was so perfect and cute. I kissed her and smelled her and rocked her in my arms. I stared at her face… studied it… begged her to open her eyes. The whole time I was in labor, I held onto this fantasy that she would be okay after all… even after she came out, I thought maybe a nurse would come back in and tell us that’s it’s a miracle, she’s alive… she’s okay.

Of course, nobody gave us any reason to believe this would be the case… but I think the reality of everything just hadn’t nearly set in yet, and I still had this sliver of hope. For weeks, I still pleaded for this all to be a nightmare that I would wake up from, pregnant, ready to have our baby girl and bring her home. I passed her to Dave, her daddy… and he held her and wept, and looked at her with such pure love. The image of Dave holding Sadie… the two loves of my life… the one person who loves her as much as I do… he is an amazing father, and I just hate that she can’t be here to see how much he loves her… everything about her. I’m so glad he didn’t try to be stoic or brave… we both let our guards down, let ourselves be completely in that time with her, knowing how finite it was.

And everyone told us she was beautiful, and that made me glad, because even now it’s so much easier to take in a compliment than a condolence… because I know what to do with the compliment because I just couldn’t agree more – she was a precious little angel, just so beautiful… but the condolences are something we don’t know how to respond to sometimes.

I always skipped over the small blurb in the pregnancy books that talked about stillbirth… it was too much to even consider… I mean, I had already had a miscarriage the year before, and had been trying to have a baby for about four years… surely there wasn’t such a sick twist of fate ahead of us. I didn’t need to make myself sick with worry by reading about that stuff while I was pregnant. But now I wish I had known more. I wasn’t prepared, and I’m still not prepared for losing my baby.

We don’t know what happened – the autopsy was inconclusive… she was perfect, everything was right – her weight, her growth… I just grapple constantly with what I could have done to kill her, and it is awful. It is unbearable.

Being out in public is a nightmare… there are pregnant people everywhere, babies, little girls – on tv, it’s impossible to escape it. Not to mention I’m a music teacher at three grade schools, so I’m literally surrounded by reminders of ages that Sadie will never reach almost constantly now that I am back at work. The world is just loaded with salt to pour in this open wound. I feel like staying home, closing the blinds, not answering the phone, not looking at emails.

Her pictures are absolutely the most important things in the world to me now. I’m also very glad that we have her hospital blankets and the hats she was wearing and the onesie she had on… they smell like her. I hope that scent lasts. I know it won’t, but we have all of that stuff in a big airtight glass jar that we bought to preserve the scent as long as possible.

I’m glad for everything we have – the hospital bracelets, the foot prints, the locks of hair.

I’m glad this movie is being made. Stillbirth is something that we are far to silent about. A

nd in closing, here is a poem I wrote for my sweet girl before Christmas. The holidays were tremendously sad and difficult.
First Christmas in heaven…
I wish you weren’t there.
Daddy and I miss you
-there’s sadness in the air.
We didn’t hang stockings,
We’re not planning a feast…
In fact, I feel sick at the sight of a wreath.
I pictured this Christmas with you in my womb…
Last Christmas, I never predicted this doom.
We were together,
As close as could be-
Because last Christmas, Sadie, you were growing in me.
The mood was so different-
So joyful, naïve…
All I could picture was this year’s Christmas scene.
Me, you, and daddy—the happiest three…
Hanging your “Baby’s first Christmas” on the tree.
Red velvet dresses and cute little shoes-
Staged family photos, of course all starring you.
Instead, at your headstone is where we will be…
Crying beside your sweet, sad little tree-
I know you can see us—
That you feel our strong love…
We wish you the merriest first Christmas above.

Posted in Uncategorized

Grace’s Story

(This is a guest blog from Sara about her daughter, Grace. Thank you so much for sharing this with us, Sara.)

I think it is so great that this movie is being made, and I hope everyone sees it!

My pregnancy was pretty good overall-I didn’t really get sick or anything. I had smoked for about 15 years or so, but I quit as soon as I found out I was expecting. I did everything right: I quit talking ibuprofen and switched to Tylenol. I never ate any of the foods that could be dangerous. I always wore my seat belt. I took my prenatal vitamins religiously.

At first I really wanted a boy, and at the 5 month ultrasound we found out we were having a girl. I feel so bad about this, but I was so disappointed. Eventually I came around though, and I started to get really excited. Decorating her room was so fun; I started to think of her as my little princess, I was even gonna call her Princess Grace.

My baby shower was great, and I got a lot of cute clothes for her, lots of pink things. We took a two-day birthing class and a breastfeeding class. My last trimester was difficult; I gained the most weight. I developed carpal tunnel. I had a really hard time sleeping. I was very uncomfortable.

We did an u/s at 27 weeks and she was breech but we thought nothing of it. But getting into the last trimester in December we did another u/s at 37 weeks and she was still breech, so my dr. scheduled a c-section for December 18th (my due date was Dec 22). About a week or two later we did another u/s and surprise! she had turned around. So we decided I would go into labor on my own.

Between December 21 and December 27, I was in the triage 3 times. I was in pain. I thought I was in labor. My Dr. had prescribed Vicodin for the carpal tunnel but it was gone, and they would not give me anymore. I was dehydrated so they gave me an IV and sent me home.

I was dilated to 1 cm, they told me to expect some bleeding. I was in the early stages of labor. Grace was doing well, her heartbeat was good and everything. They basically said don’t come back unless the contractions get closer together, or you soak more than one pad per hour. I had a non stress test and a bio physical on the 26th, and again they said baby looked good. I was scheduled to be induced Jan 1st.

So when I started bleeding on the 28th, around 4pm, I didn’t think much of it. I told my husband Jim and he said if we go in there they will just send us home again, let’s wait a bit and see what happens. The night before I had been up all night, with painful contractions, and every time I contracted I had to sit on the toilet because I would have to pee and have a bowel movement simultaneously. Looking back that must’ve been when my water broke. I got zero sleep that night; every time I got close, another contraction would start.

So after the bleeding began, I decided to take an ambien (prescribed by my Dr.) and get some sleep because the contractions had seemed to let up. I did sleep off and on for about 7 hours. The next day I was still bleeding and I realized I hadn’t felt Grace move since the morning before and I got really scared. So we went back to the hospital, I was crying the whole way because I knew something was VERY WRONG .

I knew. I knew she was gone.

It had been my worst fear during my whole pregnancy and it was coming true.

We got there and two doctors did an u/s right away, they were shaking their heads and whispering to each other. They searched all over my belly and finally said the words I was dreading “I’m so sorry but we can’t find a heartbeat”.

So they took me to a better sonogram machine and did another u/s with the same results. They asked me what my birth plan was. I had intended to get an epidural. They admitted me to a birthing room and started an IV, pitocin, and an epidural. My stomach was pretty empty when I arrived and they don’t let you eat much when you’re in labor, and I couldn’t get out of bed either so it really sucked.

It took 24 hours for me to finally be ready to deliver Grace. My inlaws were there and they came in, my mother in law Mary held my hand and cried with me.

God it was so awful, sitting there knowing she was dead, knowing I had to give birth to her, knowing I would not take her home. Ever. Knowing we would go home to an empty bassinet, to an empty nursery I decorated just for my little princess.

I called my sister and told her. I called my mom as well, and she cried so hard, she wanted to come but I said no, don’t come. (They live 100 miles away.) I said come see me when I’m home. I had my inlaws there and that was enough for me.

I did not sleep that night, but I also didn’t feel any pain which was so nice. I just drank lots of fluids and snacked a bit. My good friend Fritz texted with me all night. I think my sister Cecily did too. It was nice to know they were thinking of me.

When they told me I was finally dilated enough, I hesitated. I was afraid but I didn’t know why. I put it off for an hour to get more meds; I knew it would be painful and I have a very low pain tolerance.

I pushed and pushed with each contraction for 3 hours, and it seemed to be going nowhere. To make matters worse the epidural wore off, and god it hurt so bad. I was screaming and crying. It was very traumatic. I know at one point I was swearing at them I was in so much pain. They gave me more meds but I could still feel it.

At this point the doctor said she was worried about how long it was taking and that we had a few options to help me along. We could use forceps combined with pushing, which could cause me to tear and could also injure the baby, or we could do a c-section which was risky. The risks included infection and even death because Grace had passed.

Jim said do not do the c-section unless you have no other choice. So we tried the forceps, I pushed while they pulled, and still we weren’t getting anywhere. They decided to put me under, and said they would try their best to avoid the c-section. They took me to an operating room, and left Jim alone in the birthing room, worried sick about whether I would live or die. He paced the room, waiting, amidst my blood that was everywhere.

It took them two hours, with two cuts to my perineum, and multiple doctors taking turns to get her out. They had to rotate her shoulders and even break her arm. She was big; 9lbs. 6oz., and apparently my birth canal and vagina are rather narrow.

They asked Jim if he wanted to see her, and he did. Her face was skinned in several places from the forceps, so she had wounds. But he said she was very beautiful. He held her and cried so loud and hard. The nurses came in to see if he was okay. They wanted to give Grace to me right away but Jim said no, I don’t think it’s a good idea. So they took her away as I was being wheeled in.

I awoke to Jim right by my side. They asked if I wanted to see her, but I was afraid of what she looked like and how I might feel. Jim told me he didn’t think I should, and so I decided to get some sleep. They said I could see her in the morning if I wanted.

After breakfast the next day, I decided I did want to see my daughter. I knew if I didn’t I would regret it for the rest of my life. I had to see her face, had to see what she looked like. I had the nurse put her on the table next to me; I was afraid I would drop her if I picked her up. I was very weak, and she was heavy, plus I didn’t want to see her broken arm. I held her little hand, her skin was so so cold, and I cried. I told her how much I loved her and how sorry I was that I lost her. Her wounds were scabbed up and she was swollen; Jim said she looked very different from the night before.

She looked like Jim a lot, but she had my hands. My inlaws came and spent some time with her too. We had the chaplain come and bless her. Jim left with his family to get some lunch, so I decided to take some pictures and say goodbye. If I didn’t do it then I was never going to. I kissed my Grace and told her I loved her.

We decided to do an autopsy, and have her cremated. Her ashes are in a beautiful heart shaped urn I keep on a shelf in our living room next to the memento box the hospital put together. It has a lock of her hair, a blanket, a hat, her hospital bands, her certificate of life, and her footprints. They made clay molds of her hands and feet. I’ve been sleeping with the blanket for a week or two now, it helps me feel close to her.

We had a memorial at my inlaws a week after her birth. It was nice; my family came as well as some of my friends. My sister in law Laura put together a wonderful scrapbook, and she framed some of the photos too. Some of the guests even wrote notes to us, and we put them in the scrapbook. We got a ton of sympathy cards in the mail as well.

I met with my doctor last week and the autopsy results are still pending but she was able to tell me a few things. They think it was a placental abruption, they found an old clot in the cord. My water broke and I didn’t know it, so there was an infection. Also Grace had moved her bowels. I feel some relief now, I have to admit I’d been blaming myself for her death, thinking it was something I did or didn’t do.

It’s been a little over 4 weeks now, and some days are better than others. I left her room the way it was. I am not sure what I will do with it, if anything. On the good days I feel okay, and I don’t cry much. But on the bad days, I cry so hard, and I feel like the pain could kill me. Sometimes I talk to her. I have always kept a journal, and writing helps. I started another journal, in which I write letters to her. Jim and I talk about her all the time, and we found out we both fantasize about going back and saving her. I find myself wondering if only we had had the c-section on the 18th, would she be here now?

I would give anything to have my Grace, but I know she is gone. We know that no one can take her place, but we are anxious to try for a rainbow baby as soon as we can.

Unfortunately, I still have carpal tunnel, so I’m hoping to have the surgery soon. My doctor is going to test my blood for clotting disorders.

I never in a million years thought this would happen to me. In the beginning everyone kept telling me how strong I am, and while that is a compliment, I just remember thinking, “what choice do I have?”

Hopefully this film will help shed some light on pregnancy loss. Thank you for allowing me to share my story with you all.

- Sara

Posted in Guest Blog, Your Story
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